Family Network Collaborative

In order for our investigators to most effectively conduct such research, it is necessary to ask for the input of families whose children have experienced critical illness and/or injury or who have been involved in research, particularly research focused on critical illness. Such unique and informed insight and perspective helps the CPCCRN best conduct research to meet the needs of critically ill and injured children and their families.

In response to this need for family and patient input, the CPCCRN has created the Family Network Collaborative. This collaboration provides a format for the medical investigators to work with families, and even former patients when appropriate, to best inform the work of this research network.

This Family Network Collaborative provides input in three major areas:

1. The trial’s informed consent process
2. Optimizing family engagement and long term participation in study activities and preventing study fatigue
3. Maximizing the impact, distribution, and implementation of research findings

Family Network Collaborative volunteers meet twice a year with local site CPCCRN representatives and are invited to participate in annual meetings with the entire network either in person or remotely.