Study Type: Multi Center Prospective Survey Study
Study Period: August 2006 – December 2009
Enrollment: 261
Consent: No

Purpose:

Grief is expected after the death of a loved one. Most bereaved persons work through the grief process successfully. Others develop complicated grief, a pattern of extreme or prolonged symptoms that are associated with adverse mental and physical health outcomes. A multicenter, prospective survey study was conducted to investigate the extent of complicated grief symptoms and associated risk factors among parents whose child died in a pediatric intensive care unit (PICU). Surveys were conducted over the phone or sent in the mail at 6 months and 18 months after the child’s death.

Study Documents:

• Bereavement Annotated PUD eCRF (PDF)
• Bereavement Protocol (PDF)
• Overview (PDF)

Study Datasets:

• To obtain the Public Release Research Dataset follow the procedures outlined on the main datasets page.
  • CPCCRN Bereavement Research Data Use Agreeement